The effects of self-efficacy in managing the disease and disease adaptation levels of Familial Mediterranean Fever (fmf) patients on satisfaction with life: a web-based cross-sectional study

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dc.authorid0000-0003-4944-5230
dc.contributor.authorDemir, Rahime Nur
dc.contributor.authorKirac, Ramazan
dc.contributor.authorKirac, Fatma Ciftci
dc.date.accessioned2026-02-28T12:18:08Z
dc.date.available2026-02-28T12:18:08Z
dc.date.issued2025
dc.departmentBayburt Üniversitesi
dc.description.abstractBackgroundFamilial Mediterranean Fever (FMF) is an auto inflammatory disease often accompanied by fever and serositis attacks in which peritoneum, pleura, synovium, and rarely pericardium are spared. In the study, the effects of self-efficacy in managing the disease and disease adaptation levels of FMF patients on satisfaction with life were examined.MethodsThis observational cross-sectional study was conducted using a web-based questionnaire sent via Facebook and Instagram FMF groups between February 1, 2024 and April 25, 2024. The population of this study consisted of patients diagnosed with FMF at least 1 year ago in T & uuml;rkiye.FindingsThe mean self-efficacy score of FMF patients in managing chronic diseases was found to be 4.67. According to the results of the study, physical adaptation was determined to be the highest adaptation in FMF patients. This is followed by psychological adaptation and social adaptation. In general, the scores the patients obtained regarding disease adaptation and its sub-dimensions were found to be close to the average value. The satisfaction with life scores of the patients were found to be below the average.ConclusionThis study revealed that the self-efficacy and disease adaptation levels of FMF patients in T & uuml;rkiye affect their satisfaction with life.
dc.identifier.doi10.1186/s13023-025-03931-w
dc.identifier.issn1750-1172
dc.identifier.issue1
dc.identifier.pmid40841954
dc.identifier.scopus2-s2.0-105014006096
dc.identifier.scopusqualityQ1
dc.identifier.urihttps://doi.org/10.1186/s13023-025-03931-w
dc.identifier.urihttps://hdl.handle.net/20.500.12403/6098
dc.identifier.volume20
dc.identifier.wosWOS:001558628400001
dc.identifier.wosqualityQ2
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoen
dc.publisherBmc
dc.relation.ispartofOrphanet Journal of Rare Diseases
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/openAccess
dc.snmzKA_WoS_20260218
dc.subjectFamilial Mediterranean Fever
dc.subjectSelf-Efficacy
dc.subjectSatisfaction with life
dc.subjectChronic disease
dc.titleThe effects of self-efficacy in managing the disease and disease adaptation levels of Familial Mediterranean Fever (fmf) patients on satisfaction with life: a web-based cross-sectional study
dc.typeArticle

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